Day 19

Hey Everyone,

So I browsing my facebook newsfeed and I came across a post that just cracked me up. I have mentioned before about being a member of cysticlife. www.cysticlife.org is an online community for CFers, family and friends. I tell you what, before all these websites, CF was kind of isolating. For me, knowing only one other person with CF, and he was a good bit older than me, was kind of difficult. However, today, you can connect in so many ways. Cysticlife being just one of them.
Anyways, my computer screen and keyboard are awful right now. Blogging during treatment time is interesting because my nebulizer keeps spitting in my face. I just assumed this was the way it was when I use my vest during neb time. It is a bit frustrating but I just kind of have to laugh at myself. So annoying!
Well, as I looked at fb, someone on Cysticlife posted the same thing, in fact, many others commented on the same issue. As of tonight and their tips, my nebs are spit free and it is fantastic. 
I am just so thankful that cysticlife and other resources are around where CFers can talk about these silly little things. I am no longer isolated in the daily and mundane aspects of treatments, medicine, and health. What a huge blessing to get tips, encouragement, and advice from others with the same struggles. Cystic Fibrosis has come such a long way, and the more people talk about it, support finding a cure, the better off all of us will be. Thanks so much for reading my blog. I hope it is as helpful to others as it is being to me. I have never in my life been this consistent in doing my treatments, and tonight doing them spit free. Thanks to all of you and to cysticlife!

I thought I would add a link about what the CF Foundation has decided the new policy is on infection control. Talk about isolating those with CF. It is important to do so, but can you imagine if we didn't have the Internet. It would be so hard to communicate and learn from each other.  
http://www.cff.org/aboutCFFoundation/InfectionPreventionControlPolicy/Policy/

Anyways, have a good night!